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assessing health and development after 2 years

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The Parental Interview and Reporting Questionnaire (PIRQ)
In 2004, we initiated a parental interview and questionnaire. This succeeded in correlating the parental perception of infant's status with the information gained from medical evaluation. In 2010 we will begin using the PIRQ through a phone interview with parents who are unable to attend the follow-up clinic visits.

2011 Cohort
A cohort of ELBW infants born during 2011 are being tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort continues through May 2014.

2010 Cohort
A cohort of ELBW infants born during 2010 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort is complete and was reported to participating centers along with a combined 2008-2010 Three Year Cohort.

2009 Cohort
A cohort of ELBW infants born during 2009 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort is complete and was reported to participating centers along with a combined 2007-2009 Three Year Cohort.

2008 Cohort
A cohort of ELBW infants born during 2008 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort is complete and was reported to participating centers along with a combined 2004-2008 Five Year Cohort.

2007 Cohort
A cohort of ELBW infants born during 2007 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort is complete and was reported to participating centers along with a combined 2003-2007 Five Year Cohort.

2006 Cohort
A cohort of ELBW infants born during 2006 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort is complete and was reported to participating centers along with a combined 2002-2006 Five Year Cohort.

2005 Cohort
A cohort of ELBW infants born during 2005 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort is complete and was reported to participating centers along with a combined 2001-2005 Five Year Cohort.

2004 Cohort
A cohort of ELBW infants born during 2004 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort is complete and was reported to participating centers along with a combined 2000-2004 Five Year Cohort.

2003 Cohort
A cohort of ELBW infants born during 2003 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort is complete. Data analysis is complete and was reported to participating centers with a combined 1998-2003 Six Year Cohort.

2002 Cohort
A cohort of ELBW infants born during 2002 were tracked and evaluated between 18 and 24 months corrected age. The data collection is complete and was reported to participating centers, along with a combined 1998-2002 Five Year Cohort.

2001 Cohort
A cohort of ELBW infants born during 2001 were tracked and evaluated between 18 and 24 months corrected age. The data collection for this cohort ran through June 1, 2004. Data analysis is complete and was reported to participating centers, along with a combined 1998-2001 Four Year Cohort.

2000 Cohort
A cohort of ELBW infants born during 2000 were tracked and evaluated between 18 and 24 months corrected age at network centers. Data forms were simplified for this cohort and data analysis is complete and was reported to participating centers, along with a combined 1998-2000 Three Year Cohort.

1999 Cohort
A cohort of ELBW infants born during 1999 were tracked and evaluated between 18 and 24 months corrected age at Network Centers. Data analysis on this cohort is complete and was reported to participating centers.

1998 Cohort
A six month cohort of ELBW infants born during the later half of 1998 were tracked and evaluated between 18 and 24 months corrected age at Network Centers.  Data analysis of this cohort is complete and was reported to the participating centers.

Interested in participating in Follow-Up?
Do you have a follow-up clinic associated with your NICU? Do you evaluate infants at 2 years of corrected age using either the BSID II or BSID III? If so contact us for information.  

Mission:
The Vermont Oxford Network Extremely Low Birth Weight (ELBW) Infant Follow-Up Project was established  to assess the health and neurodeveopmental status at 18 to 24 months corrected age of infants born weighing less than 1001 grams or less than 28 weeks gestation age. The ELBW Infant Follow-Up Project will create a meaningful and generalizable database regarding a large cohort of high-risk infants.

Goals
  • To establish a network of centers capable of tracking infants for long term follow-up.
  • To identify measures of health and developmental status that can be collected reliably, accurately, and in a standardized manner.
  • To obtain health and developmental outcomes of surviving ELBW infants.
  • To assess the impact of delivery room interventions and other complications of prematurity on the health and developmental status of ELBW infants.


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